Emily M. DeArdo

Emily M. DeArdo

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The Top Ten Posts of 2019

Emily DeArdoComment
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What did you guys like to read the best in 2019? Saints, Jane, and Stitch Fix…..

Drum roll, please…….

10) Catherine of Siena, Doctor of the Church

9) Poems for St. Cecilia’s Day

8) The About Me Page

7) “Happiness in Marriage Is Entirely A Matter of Chance: Jane Austen and Married Soulmates” (this one had 425 views, so go Janeites!)

6) Stitch Fix Box #4

5) Stitch Fix: When You’re Not Happy With Your Stylist

4) Hospital Hair Salons

3) The Forgotten Demographic: Catholic Single Women

2) St. Martha and the Dragons (this is ALWAYS in the top 10 posts. I have no idea why!)

And number one is….

the main blog page. :) So I guess it’s good that people are coming to see what’s new!

Christmas is Practically Here Seven Quick Takes

7 Quick Takes, holidays, movies, knittingEmily DeArdo2 Comments

Linking up with Kelly!


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So gonna start off with—I saw Star Wars last night. No, not at midnight. At a special 5:00 “fan screening”—I did get a cool opening night pin (sorry, bad photo in dark theater!):

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So that was pretty cool. And there were heated seats in the theater—talk about decadence. I’d actually been wanting to try this out, and it was like a nice heating pad feel in your lower back, so I have to say, enjoyable. And you could turn it on and off! Yes, I am easily amused.

Anyway, no spoilers here, but I think it’s the best Star Wars movie since Empire. The critics who are giving it crap? What are they watching? No idea. But it’s good.

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I am going to start Christmas baking this weekend, because I only have to make two things—Ina’s Hermit Bars, and her crumble bars—for the family to nosh on over Christmas Day. I’ve made the hermit bars every Christmas for a few years now, they’re easy and delightfully good. I don’t do the glaze thing. To me, it’s an easy way to cut down on sugar intake by removing it and thus we can have more sugar later. Right? :)

For the crumble bars, I leave out the almonds, and you can use any type of jam you like. I’m using blueberry this time.

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I’ve started a baby blanket for a friend’s baby….

Bad apartment carpet, forgive me. :)

Bad apartment carpet, forgive me. :)


The yarn is Knitpicks Shine Sport, which I really like (L-R: Robot, Clarity, Sky, and French Blue). It’s so smooth in my hands, but it’s not sliding all over the place (One reason I love using wooden needles. When I tried metal ones, disaster.). It’s 60% cotton and 40% beechwood fiber, whatever that is, but I figured this would be good for a baby. And it’s washable!

The pattern is….another story.

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I’m making the Quince Sully blanket pattern. Pretty, right? I looked at the “skills needed” section and thought, OK, I have all those skills. I can pick up stitches and change colors and knit and purl and totally long tail cast on (that’s the only one I do…..)….

Bought the pattern.

then read the pattern.

The pattern calls for binding off the main color sequence (stripes), and then picking up the border and increasing stitches and god knows what else, and the number 600 something popped up, and I just went oh….


Whhyyyyy pattern writer? WHYYYYYY?????

Anyway, besides that bit of crazy, it’s really easy to do, with a nice seed stitch row with every color change. I really like doing it. I’m just scared of the border. It might not happen.

I do not think the baby will mind if there is no border, right? Because, um, my skills may not be up to it.

Sigh….
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It’s that time….if you haven’t pre-ordered the book, please do so! If you have, MUCHAS GRACIAS!

Next week….well, OK, in January, there are fun graphics coming!!! I’m excited about them!
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Two more gifts to wrap. Well, three. Two of them go in gift bags, and one requires actually wrapping, at which I AM TERRIBLE. Oh well!

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Are y’all done shopping? Sort of done? Haven’t even started? :)










Seven Quick Takes --Second Friday of Advent

7 Quick Takes, goal setting, yarn alongEmily DeArdo2 Comments
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Around these parts this week:

Yarn Along #93

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Soooo this week. It was pretty quiet, which was nice. I got my hair cut on Wednesday. The reason this is notable is because I am terrible at doing hair cuts. I gone like once a year, and I really should go more often. Resolution for 2020—have better hair? (As in, don’t let split ends go one for months and months without end….)

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speaking of resolutions—do you set them? I generally don’t. I use Lara Casey’s powersheets to set goals for the year, and that’s incredibly effective for me. I’m in the middle of doing the prep work for the 2020 sheets. If you haven’t used powersheets before, or have trouble setting and achieving your goals, I highly recommend these. I doubt my book would’ve been published without the work I did with the powersheets. That’s how important they’ve been to me over the last five years.

Her blog is also full of great tips and she walks through doing the prep work with you! So it’s really lovely and I highly highly recommend this way of goal setting.

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Let’s talk about Advent? In my house, I have my tree, nativity, and Advent wreath up. Baby Jesus isn’t in the manager yet, and the Wise Men are making their way to the manager (they’re currently living on the living room bookcase). I keep my tree up until Candlemas (Feb. 2), pretty much. If not the tree, then the nativity for sure. I love Christmas, the whole Christmas season, and so I will celebrate it to the hilt.

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How are you doing on shopping? Are you done? I am, yay! (And yes, from every take until the book is published, there will be a link to buy the book—it makes a great gift, go get it….)

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In terms of Christmas movies, I watched The Nutcracker and the Four Realms last night, and it was pretty good. I think kids would like it. It got really iffy reviews, which I don’t really understand. It’s a fine movie. (Fine as in, perfectly acceptable and you don’t feel like you’ve wasted two hours of your life when it’s over.) If you have never seen Muppet Christmas Carol, you must. (It’s on Disney+!). That’s all I’m gonna say about that. You have to watch it.

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It’s almost Gaudete Sunday! Yayyyy! I love lighting that pink candle.

How was your week? What are you up to this weekend?

Yarn Along #93--new project, finished project, project in progress.....

yarn along, books, knittingEmily DeArdo1 Comment

I missed this last week, so was happy that Ginny didn’t have the link up and I missed it, because last week was insane (see here for why). But now I’m (knock wood!) feeling like I am ready to get back into rhythm in all ways, and that includes knitting! (I’m not sure if Ginny will have a link-up this week either, but here’s my knitting and reading anyway!

New project

For some reason, I always cast on some new project Thanksgiving weekend. I don’t know why. It must be some sort of switch in my brain. “Ah! Turkey! Must cast on new project!”

So this year it’s one I’ve already done before—the Skye cowl—but in a deliciously autumnal color that I ordered while I was in the Resort. (My journal is full of knitting scribbles—some of which are really just that, scribbles!—about projects and colors and types of yarn….the meds obviously made me go nuts in this department!) The color is Quince’s malbec, in their puffin yarn, which is so nice and squishy and knits up beautifully. I think I twisted stitches somewhere, but honestly, I don’t really want to rip it out. I don’t mind a cowl with a twist in it. If it was a hat, obviously, I would’ve had to start again. But with a basic cowl? Meh. So I didn’t and I just keep knitting.

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Finished project

My Felicity scarf, made of Colonial Williamsburg yarn! Yay!

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Simple, but I really liked working with this yarn. It’s thick enough that you can cross it over your upper chest but not so thick that a coat won’t close nicely over it. It’s also nice to grab if I’m just running out to get the mail and want something a little warmer over my top, but not a whole coat.


In Progress Project

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Yup, I’m still working on the Isla scarf. This takes four skeins of yarn, so it’s a long process, but I’m about halfway through the third skein, so the end is nigh!

Reading….

You can see my pile there. I read When Less Becomes More last month, and it’s probably my favorite of Emily’s books to date. My Aunt Mary got me The Dutch House when I was in the hospital and I (sadly) have not started it yet, but it’s the next book I’ll start! A Single Thread was a Christmas gift (early) and that’s after The Dutch House.

(Speaking of books—pre-orders for Living Memento Mori are open…..)

How about you? Are you knitting any Christmas gifts? What are you reading?



Seven Quick Takes--The Medical Saga Endeth (we think)

7 Quick Takes, CF, health, hearing loss, the bookEmily DeArdo1 Comment
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Linking up with Kelly!


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So, here’s a spicy take I wrote this week about Medicare!


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And here’s the follow up:

So, we got the great folks at the CFF involved (they have a team that just looks at insurance stuff). They came to the same conclusion we did: that there really is no plan that covers everything, but that hospitals and doctors and I will make it work. (think Cinderella’s sisters: “I’ll make it fit!”) NCH doesn’t normally have a lot of Medicare people (because, it’s a, um, Children’s hospital), but….”they’ll take it”, says the finance office. (Thank you finance office!)

What I kept hearing from everyone was “well, we haven’t had to deal with this before.” Yes, I am the one that is trail blazing for everyone else. Future generations, YOU ARE WELCOME! I expect copious floral arrangements on my grave and Masses offered after I die. :-p

So, my hospitals are (sort of) covered. My main doctors—as in, the Big Three—are covered. The next issue?

The Prograf (or, THE GRAF).


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The prograf is the med that basically keeps me alive. It keeps my lungs from realizing that they aren’t actually, um, the factory setting. :-D

Now, when I was emailing my nurse about this, she said, “Well, we can always try generic.”

“What do you mean?” quoth I. “Generic doesn’t work for me!”

“Well, the formulation is a lot better now, and the hospital is even considering switching its formulary to the generic,” nurse said.

AH! Well, that would solve problems!

Or….would it????

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So I go to the insurance site. I plug in generic prograf, expecting to see massive cost savings and ease of access!

Hahahaha.

NO.

Generic Prograf is covered—but as a tier 4 med, meaning it’s like, non-preferred, no one wants to use it, and then I see, oh, step therapy may be applied.

Step therapy, for you new people, is when you have to try other drugs first before the company will pay for the med you want.

Yeah, we’re not doing that with the drug that keeps me alive.

So, what we’re going to do is go through prior authoritzation stuff, and we won’t have to pay out the nose, because I qualify for the Medicare Extra Help program (which is a great thing, so kudos there), so we can’t pay more than a certain very low amount.

So.

I have picked a plan. The saga is over. (For this year!)


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In other news, my tree is up, and Susan the Corgi is ready to celebrate….

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And I think I’m doing buying gifts. That’s exciting. :)

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I had my first book interview on Wednesday with the delightful Fr. Patrick, O.P. We talked for forty-five minutes about all sorts of good stuff! The interview probably won’t be up until January, but when it is, I’ll let you know! I’ll be posting all media related to the book on the book’s page. . (And pre-order links, to a variety of retaliers, are there are well! Amazon US, Canada, and UK; Barnes and Noble; Indiebound….)

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Just a note about what Kelly wrote about today—how we tell the stories of the disabled.

One of the things I’ve noticed, especially as the practice euthanasia almost on demand rises, is that people don’t really understand life with a disability, or an illness. They think they do. They imagine the horrors of it.

But honestly, that isn’t the way it works.

When I lost my hearing, it was very gradual, over a period of years. It was gradual. Now, if I’d lost it all at once, yes, that would’ve been traumatic, and highly so.

Did I grieve losing my hearing? Um, yes. A lot.

But when it came to CF stuff, it was gradual. I still enjoyed my life, and I do enjoy my life, even with insanely stressful weeks like this week.

Being disabled makes things harder, but it doesn’t make my life worthless or less.



Why Medicare for All Is a Terrible Idea

health, politicsEmily DeArdo3 Comments
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OK, I know, some of you don’t like political posts.

And this is political, in the sense that, all the candidates who are pushing “Medicare for All” are not candidates that should be voted for, amen.

But, really, this is a look at how Medicare “works”—as someone who is currently going through the incredibly difficult work of selecting a plan.

Here’s why it’s hard:

  1. I take a medication that must be the brand medication. I cannot take the generic because we can’t get what’s called a “therapeutic level” with it. The drug in question? Prograf. The drug that basically keeps me alive. So, I have to take brand name Prograf, which is expensive.

  2. I see all the normal doctors people see—dentist, eye doctor, etc. But I also see special specialists. Meaning, doctors that are not normal run of the mill doctors.

  3. I also see these doctors in two separate hospital systems—The Resort, and OSU (Ohio State).

So, we must find a plan that covers my meds, my doctors, and my hospitals.

Under private insurance, this was not hard at all. I just typed in names and meds, saw they were covered, signed up. Done. It took less than a half hour.

Private insurance did not like to pay for prograf, but it did. And if it didn’t, then the manufacturer had a Prograf saver card I could use to reduce the out of pocket costs.

Now, I have Medicare.

And here are all the problems.

  1. There are plans that refuse to cover prograf. It’s not even in their formulary. It just says, “not covered.” Even though this med is basically what keeps me alive. There are many, many plans who do not cover it in any way, shape, or form.

  2. There are plans that cover the med, but not my doctors. As in, one entire group of plans refuses to cover any OSU doctors. OHIO STATE! One of the top-ranked systems in the country!

These are, to put it mildly, big problems.

My dad and I have spent at least three days—as in, hours upon hours!—on the phone with people, looking at plans on line, until our eyes have crossed and our brains have melted.

Because a plan will cover some of these things—but then we’ll see, oh, there’s no out of pocket max. Well, that’s gonna get expensive, quickly.

They’ll cover my endocrinologist, but not my transplant doctor!

They’ll cover doctors, but not meds!

Or meds, but not doctors or hospitals!

Do we see the problem here?

Oh, and to make it even better, Medicaid will cover Prograf. But Medicare plans don’t!

And the copay card? Doesn’t work for Medicare patients. Only private insurance patients—when Prograf was covered by my private insurance!

This is insanity.

They’ll cover things like acupuncture and chiropractic, but not the med that keeps me alive. Not top doctors at top medical facilities. Nah. That’s too hard.

Also, it’s insanely complicated to compare plans. They don’t always list what doctors are covered, or what meds are covered. They don’t mention facilities. They put in stuff like Silver Sneakers—well, goodie, a free gym pass!—but not stuff that is actually life saving and vital!

How about we not cover gym costs, and instead, cover medications that keep people alive?

Oh, and. This is the good part.

Here’s an NYT story on this issue. Medicare will cover transplant meds if the transplant occurred while the person was on Medicare. NOT BEFORE.

This is the biggest piece of insanity I have ever seen. These are drugs that we know work. They are not new therapies, they’re not snake oil. They are proven. And yet, no, I’m sorry, we won’t cover that.

We have presidential candidates saying that this insanely complicated, twisted, insane system should be the one health care provider for the entire nation?

No.

Or, to be spicy, HELL NO.