Emily M. DeArdo

Emily M. DeArdo

author

New port is in!

CF, healthEmily DeArdoComment

Hospital lobby at 6:45 AM :)

The port is dead, long live the port!

So last Thursday I had my old port—17 years, RIP!—taken out, and a new POWER PORT put in! (Power ports enable me to get things like contrast for CT scans through my port instead of trying to find a vein for that. They’re GOOD!)

This was a sort of complicated thing, because it involved both sides of my chest. I wasn’t sure where they’d put the new port, and the doctors decided to put it on my right side. So they had to take out the old port—which was buried pretty well, because I weighed ninety pounds when it was put in!—and then put in the new port on the right side, which apparently is the “preferred side” for port placement. Whatever!

This wasn’t done in an OR or under general anesthesia, like my first one was. This was “twilight sedation”, which is what I get for my bronchoscopies—you’re sedated, but you can still talk and respond to commands. I don’t remember anything from the actual procedure. They apparently had to give me more sedation than they thought, probably for two reasons: one, they had to go int through my neck to place the new port and I HATE having my neck messed with, and two, my face was covered by the surgical drape, and I don’t like that either. I was sort of freaking out about that when I fell asleep, so I’ not surprised my subconscious was still freaking out.

(It’s weird. I don’t mind masks and things on my face—like aerosol or oxygen masks. But if I’m flat on my back I hate it. I don’t know why. It’s a thing!)

Anyway, we were home by lunch time. The dressings are off, and now I have steri-strips, instead of stitches, that are still healing. This limits my ability to turn my head and how I move my upper body, which is a bit annoying, and of course impairs driving (can’t turn my head all the way to see things).

I’m not in a lot of pain which is nice. Sleeping is still sort of hard. But fortunately this week is entirely clear so I can just hang out at home and work on knitted Christmas gifts and read while things heal up.

So, I’m doing fine, glad to have my new port!

A Note from the Queen

fun, historyEmily DeArdo2 Comments

Being the Anglophile that I am, the past week has been pretty much non-stop immersion in British media (especially the BBC’s streaming) and soaking up all the history and pageantry that comes with the death of a monarch.

The royal website upon the queen’s death.

I had written the queen a letter—a brief one—at the time of her Platinum Jubilee, just expressing congratulations and thanks for her service. I didn’t think I’d get anything back, since I’d read that the postage allowed to the monarchy offices had been reduced in the last round of government austerity, so I just sent the note without expecting anything. I just wanted to say thanks. (I think it’s important to say thank you to people!)

When I went to my mailbox yesterday, I found this—the card was postmarked the day before she died.

It was a card from the queen thanking me for my note.


The front of the card, with her royal cypher.

Image on the back of the card.

Getting this card, during the time we’re turning the queen’s passing, was very memorable (And a little it eerie, if I’m being honest!). It’s definitely something that I will treasure!

Maddie: Eight months!

MadeleineEmily DeArdoComment

I cannot believe that Maddie is EIGHT MONTHS OLD.

Time is surreal when it involves kids.

Here’s what she’s up to, from her mom:


Maddie can:

Sit for a long period

Stand with very little assistance

Trying to bounce!

Crawl!

Use utensils

Use her voice.. loves to scream and babble

Now drink out of an open cup and a 360 cup (by herself!)

She puts herself to bed now

Trying to crawl toward Bella (the cat) and pet her

Know the words “mama” “doggy” “bottle” “night night” “daddy” “bath”


Maddie likes:

Audio books

music

Her “command center” (it’s a sort of baby gym—she goes in the center and she has toys all around her in the circle, but the bottom bit isn’t stable, so she works on her muscles while she’s playing )

Fishy and Sophie of course (toys :))

Her stacking blocks

Using utensils herself! Don’t help her!

Going out to eat

Car Rides

LOVES Doggie (Duke their dog)

Lemons and limes

Swings!

Looking at herself in the mirror

Maddie does not like:

Sleeves

Being overtired

Put in stroller (initially or when it’s not moving)

Face being washed after meals



She likes limes and she cannot lie.

Maddie and Duke

Monthly pictures: